Fair Go for Kids May 2018 Newsletter

Read updates on some of the children and families helped so far in 2018

Published 21.05.18

Download the May 2018 Newsletter

The Fair Go for Kids Committee meets every month to review applications for funding support received from local families, carers, clinicians, staff and service providers. Requests are reviewed as quickly as possible with a view to providing relief for local children in need without a lot of red tape.

Here are some recent updates.

 

Stephen (Medowie) aged 5

Background: Stephen was diagnosed with Autism including language impairment. This resulted in Stephen becoming very frustrated and angry, which was having an impact on his relationships with peers and family members.

How Fair Go for Kids helped: Fair Go for Kids provided $3,775.00 to fund “The Listening Program”, a therapeutic tool and auditory program that helps kids to self-regulate behaviours through increased capacity to clearly hear and articulate their needs.

Outcome: Stephen and his family were thrilled to receive this support, and Stephen has now undergone the initial assessment which sets benchmarks to measure his future progress against. We’ll stay in touch with the family to see how Stephen progresses.

 

Did you know? Early intervention (or, trying to stop a small problem becoming a bigger problem over time) is one of the most effective techniques to help lessen the effects of a disability or developmental delay.  This can be related to their physical development, cognitive development, communication, social or emotional development, and adaptive development.

 

Shayllan (Dungog) aged 6

Background: Shayllan has Global Developmental Delay and uncontrolled Epilepsy. NDIS has funded a powered wheelchair for her, but declined a request for access ramps to the home. Shayllan’s mother was having to manually lift the wheelchair up two steps which was taking a physical toll.

How Fair Go for Kids helped: Fair Go for Kids arranged to supply and install portable ramps at Shayllan’s home, which cost $1,466.50.

Outcome: Shayllan has much easier access to her home, which has increased her independence and created better interactions with her family. And of course, there’s no more heavy lifting for her family and carers. 

 

Did you know? Global Development Delay is usually defined by a child being diagnosed with having a lower intellectual functioning than what is perceived as 'normal'. It can also be a symptom of other underlying medical conditions, including:

  • Autism spectrum disorders (ASDs)
  • Cerebral palsy
  • Foetal alcohol spectrum disorders
  • Landau-Kleffner syndrome
  • Myopathies, including muscular dystrophies
  • Genetic disorders, such as Down syndrome and fragile X syndrome.

 

Jett (Jesmond) aged 6

Background: Young Jett has been diagnosed with an intellectual disability, and required follow up appointments with a Paediatrician as a form of early intervention. The visits would place a significant financial strain on Jett’s family, and were unlikely to happen.

How Fair Go for Kids helped: Fair Go for Kids worked together with local Paediatric service “Medicine Matters” to provide Jett with a solution for the family to access two additional appointments plus a Management Plan.

Outcome: Jett has commenced his follow up appointments which provide critical early interventions to help his ongoing development.

 

William (Lakelands) aged 4

Background: Young William was having difficulty with stuttering. Early intervention was crucial so William could enter Kindergarten with greater confidence and verbal clarity.

How Fair Go for Kids helped: Fair Go For Kids provided $1,920 in funding support to local Speech Therapy service “A Growing Understanding”, to provide William with an innovative speech intervention called “The Lidcombe Program”.

Outcome: William is being enabled to reach peer benchmarks with his speech as he prepares for Kindergarten.

 

Did you know? The Lidcombe Program is a behavioural treatment for young children who stutter. The treatment is administered by a parent or carer in the child's everyday environment. Parents learn how to do the treatment during weekly visits to the speech pathologist, creating a positive experience for the child and the family.

 

Progress update from the family of Seamus:

We are delighted to share the great results being achieved by local lad Seamus, who was provided with Fair Go for Kids funding support for “The Listening Program” earlier this year.

Seamus is showing fantastic progress! Here are some of his great results:

  • Filtered words tests a child’s ability to identify words with parts that are missing or muffled. Seamus initial result 0.1% then when retested March 2018 Seamus was 5%                           
  •  AUDITORY FIGURE GROUND SUBTEST:  The inability to understand speech in the presence of background noise is one of the most common auditory complaints of individuals who have auditory processing, language, and learning problems. Seamus’ initial result 0.1% then when retested after 7 weeks of listening Seamus was 25%  
  •  COMPETING SENTENCES SUBTEST:  This tests unrelated sentences presented to the left and right ears simultaneously. Initially, this task was too challenging for Seamus, however in April he was able to successfully participate, providing a baseline measure to evaluate future progress.

 

“Mum is astounded at how much Seamus speech has improved since he began his therapy, I imagined you too would be thrilled to see the benefits being realised with Seamus.”