How Fair Go for Kids has helped our local kids in need
Stephen, aged 5 from Medowie
Background: Stephen was diagnosed with Autism including language impairment. This resulted in Stephen becoming very frustrated and angry, which was having an impact on his relationships with peers and family members.
How Fair Go for Kids helped: Fair Go for Kids provided $3,775 to fund “The Listening Program”, a therapeutic tool and auditory program that helps kids to self-regulate behaviours through increased capacity to clearly hear and articulate their needs.
Outcome: Stephen and his family were thrilled to receive this support, and Stephen has now undergone the initial assessment which sets benchmarks to measure his future progress against. We’ll stay in touch with the family to see how Stephen progresses.
The Listening Program
Shayllan, aged 6 from Dungog
Background: Shayllan has Global Developmental Delay and uncontrolled Epilepsy. NDIS has funded a powered wheelchair for her, but declined a request for access ramps to the home. Shayllan’s mother was having to manually lift the wheelchair up two steps which was taking a physical toll.
How Fair Go for Kids helped: Fair Go for Kids arranged to supply and install portable ramps at Shayllan’s home, which cost $1,466.50.
Outcome: Shayllan has much easier access to her home, which has increased her independence and created better interactions with her family. And of course, there’s no more heavy lifting for her family and carers.
William, aged 4 from Lakelands
Background: Young William was having difficulty with stuttering. Early intervention was crucial so William could enter Kindergarten with greater confidence and verbal clarity.
How Fair Go for Kids helped: Fair Go for Kids provided $1,920 in funding support to local Speech Therapy service “A Growing Understanding”, to provide William with an innovative speech intervention called “The Lidcombe Program”.
Outcome: William is being enabled to reach peer benchmarks with his speech as he prepares for Kindergarten.
The Lidcombe Program - how it works
Jett, aged 6 from Jesmond
Background: Young Jett has been diagnosed with an intellectual disability, and required follow up appointments with a Paediatrician as a form of early intervention. The visits would place a significant financial strain on Jett’s family, and were unlikely to happen.
How Fair Go for Kids helped: Fair Go for Kids worked together with local Paediatric service “Medicine Matters” to provide Jett with a solution for the family to access two additional appointments plus a Management Plan.
Outcome: Jett has commenced his follow up appointments which provide critical early interventions, to help his ongoing development.
Seamus – an update
We are delighted to share the great results being achieved by local young man Seamus, who was provided with Fair Go for Kids funding support for “The Listening Program” earlier this year.
• FILTERED WORDS tests a child’s ability to identify words with parts that are missing or muffled. Seamus' initial result 0.1% then when retested March 2018 Seamus was 5%
• AUDITORY FIGURE GROUND SUBTEST: The inability to understand speech in the presence of background noise is one of the most common auditory complaints of individuals who have auditory processing, language, and learning problems. Seamus’ initial result 0.1% then when retested after 7 weeks of listening Seamus was 25%
• COMPETING SENTENCES SUBTEST: This tests unrelated sentences presented to the left and right ears simultaneously. Initially, this task was to challenging for Seamus, however in April he was able to successfully participate, providing a baseline measure to evaluate future progress.
STORIES FROM OUR ARCHIVE
Jessica was 8 years old when her story became known to us. A happy, friendly girl, Jessica attended school just like her sister and friends, thinking herself no different to any of her classmates. However Jessica was born with MPS1 - a life threatening genetic disorder that prevents the production of an enzyme responsible for breaking down bi-products of cell regeneration and body growth. It causes a build up in the liver, spleen, bran, bones, joints, eyes, heart, lungs and skin. The build-up causes rapid disease progression, developmental delay, severe physical problems and a significantly shortened lifespan.
Jessica was experiencing difficulty writing, largely due to joint pain in her hands. To help ease this, Fair Go for Kids provided two software programs, Clicker and First Keys. The Clicker program helps create and edit documents using pictures and speech support. First Keys program is a fun introduction to the keyboard by using speech, phonics and widgit symbols in colourful and engaging letter exercises to teach literacy skills.
First Keys program screen
Keira's Story - waiting list for critical surgery cut from two years to two weeks
At just one year old, Keira was diagnosed with an anatomical disability in her brain and experienced learning and hearing problems. Through the public health system, Keira was facing an 88 week delay for ear surgery. This was at a time during Keira's development where hearing was needed to learn language. Fair Go for Kids stepped in and within two weeks, had undergone the required surgery.
Lachie's Story - waiting list for critical dental surgery cut from one year to two weeks
Lachie was four years old when he became known to Fair Go for Kids. Lachie was diagnosed with autism, epilepsy, sleep apnoea, and developmental delay. He developed painful tooth abscesses, and required a general anaesthetic for treatment. Lachie faced a waiting list of at least one year through the public system, and Lachie's mum was attempting to secure a personal loan to expedite treatment through a private hospital. Fair Go for Kids provided support to have Lachie's dental surgery performed within a fortnight.
Eleven year old Ben is diagnosed with Cerebral Palsy and is cared for around the clock. To get around, Ben's family use a van, however they needed a wheelchair and lift to help get Ben in and out. The family held a big fundraiser, but were still short of the required funds. Fair Go for Kids were happy to step in and make up the shortfall.
Speech Therapy for 16 students
A local Special needs class identified that 16 students between years one and three had significant speech difficulties. Fair Go for Kids provided funding and support for Speech Therpay sessions held every Friday afternoon for 20 weeks.
Alex was 15 years old and one of six children when he became known to Fair Go for Kids. Alex has Autism, Hypotonia (low muscle tone), Anxiety and Speech Delay. Fair Go for Kids helped Alex by providing a laptop, weighted blanket, Swiss Ball and Swiss Ball Chair to help help manage his symptoms.